Posts Tagged ‘WLS’

January 5th, 2009  Posted at   Divorce, Health, MILS, Mommy stuff

cat

Went to the neurologist today for my EMG, followed by a consult with him. The EMG sucked, as expected and as remembered from 15 months ago. Especially when they stick the needles in your muscles and then say “please flex it this way/tighten it that way.” Um, no thanks? Or when they are attaching the water-soaked gauze-covered metal ring to your finger before they hit the electric buzzer to shock your nerve and all you can remember is those ads for electricity/water mixing gone wrong. At least my frizzy unwashed hair went along with the electrocuted look. (We will be getting a replacement hot water heater on Thursday, thank God.) Verdict: damage to ulnar nerve explaining the numbness, tingling, etc. But slight, which is good. Small fiber neuropathy, as before.

After the torture was over and I got a year’s worth of refills on the CrazyMeds from my doc with a “keep taking your vitamins, see if there’s a study you can get into to look at the malnutrition-induced neuropathy and call me if the pain gets worse and you need more drugs,” I headed home for about 1.5 hours of soup and rest before jumping back in my car to head back downtown to the dentist. I thought I’d be there for maybe two hours tops. Three hours later, I woke up from a little laughing gas-induced nap to find the dental assistant chipping away at my new crown and I mumbled through my thick, dry lips, “whatimzit?!” When she replied “4:15″, you should have seen me run. Leg pain aside, I flew out of that chair and down the street with about 10 seconds to spare. The tow truck was one car in front of mine towing the line of illegally parked rush hour lane vehicles. Crap. I still got a $65 ticket, but that is much better than having to deal with a tow! Unfortunately it took the dentist another 45 minutes to finish my teeth and then she gave me the bad news of four more teeth that need work, one of which is a bone decay under an old root canal. Darn tooth-eating dry-mouth-inducing meds. Let this be a warning to those of you on anti-convulsants (or taking IV iron): chew Trident, use Biotene dry mouth rinse, etc. Do whatever it takes to avoid having your teeth go from perfect to rotted in 6 months.

The good news is that the dentist took pity on me and agreed to send a digital x-ray to her endodontist friend to see if my rotting bone is really serious (i.e., needs IMMEDIATE attention versus a few months) so that I can figure out where to cut back. I think I’m going to have to start by sitting down with Pumpkinhead’s psychologist this week and telling her that, continuity or not, I need her to recommend another therapist for him that works with my insurance. I just cannot afford the $140/week for only 30 minutes with her. Ack. At least if my insurance covers it, it will only be $35. I told her that before but she said I had to stay with her because he needs consistency. I’m going to ask her to tell him she wants him to see her friend, Dr. “____” and that way he will feel safe. I think that should work. Please!?!? Guess we will see…

funny pictures of cats with captions

October 16th, 2008  Posted at   Health

I’m a fun girl. I have a big heart and I love to sing out loud at the top of my lungs and hug a good friend. I’ll dance in the rain with you or get up and do karaoke. I adore a good microbrew and a thick juicy steak with the guys. So why is it that people seem to think I am super-serious and uptight? I just do not get it.

Tuesday night I went to watch Blue Eyes bowl after a very, very long day at work (stayed until almost 9 and had to miss two classes – crap!) I was showing his coworker the tattoo I wanted to get. Her husband looked me up and down and said, “Yeah right. The day you get a tattoo will be the day I do.” So you can probably see where this is going. Don’t freaking dare me, man.

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Sorry the picture kind of sucks. The tattoo artist took it with my cell phone camera right after he finished the work and then he put ointment and a bandage on it. I can’t take another picture right now because it is goopy and the flash reflects off of it. For those of you asking what the hell it is, it is a tattoo of a Kiwi, the flightless national bird of New Zealand. The pattern inside is Maori and symbolizes rebirth/new beginnings.

It is on my left hip. No, it didn’t really hurt but it probably helped that I have very little nerve sensation in that area following my spleenectomy in 1997. Can’t feel tickling or anything brushing my skin there. I went after class, read a book the whole time, jumped up, grinned, paid the man $120 and left. It is forest green.

For comparison, here is what a kiwi really looks like:
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May 14th, 2008  Posted at   Health
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Sorry I haven’t been posting much. Pain, exams, the usual stuff. I have lots of fun and exciting things to post about Pumpkinhead, Mother’s Day, my new nanny :mrgreen: , etc., but I’m in a ton of pain this week so it’ll have to wait.

The good news is that after months of weird side effects like calling my son’s head a hat or Jim, Joe or the table a piano (soooo impressive at work!), suffering from wild mood swings, breakthrough bleeding, and drinking gallons of water to ward off potential kidney stones from the Topamax, the neurologist has concluded that, indeed, I am too sensitive to this medication. He says that 100mg twice/day is a “child’s dose.” If that’s the case and I was practically manic at that dose, I’d hate to see what I’d look like at 200!

Anyway, I was concerned he’d put me on a TCA, which cause massive weight gain, but I’d forgotten about Cymbalta. It was one of the first medications I tried. My pain came back strong after 6 weeks on 30mg, but I didn’t want to go up to 60 because of the anti-Bow-Chicka-Bow-Wow side effects (really, really ANTI). However, after almost a year of trying a bunch of other things, Chapin and I both agree that, as important as that is, I am NO FUN in pain and that needs to get resolved.

So… Doc told me to quit the Celexa cold turkey and start the Cymbalta. Taper the Topamax down over a week’s time. By this time next week, God willing, I should sound more like my old self. And, hopefully, some of my pain will be relieved. I also have an appointment tomorrow for accupuncture to see if that helps (thank you to those who suggested it). In addition, I’m considering a Myer’s Cocktail, but the first visit is $200 and each cocktail is $144!!! Could be very helpful, but :shock: !

P.S. I am still using the homeopathic remedies I mentioned, but at 1/2 capful per day, it is a sloooowwww process and, in the meantime, I’m hurting!

May 1st, 2008  Posted at   Health
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If you’ve been reading my blog for a while, you know that I had a roux-en-y gastric bypass in 2001 and am now suffering the often unadvertised consequences (severe malnutrition [iron, B12, D, calcium, serum protein], peripheral neuropathy, etc.), along with nasty neurological side effects from the medication they are using to try to treat the neuropathy (which makes law school so much easier, I tell you!)

Fortunately this week everyone is writing my blog posts for me. MeltingMama, another young mother who had the same surgery four years ago and who is suffering similar malnutrition issues (except she also has hypoglycemia) has posted a really well-done post on why she would NOT have a roux-en-y gastric bypass again. I encourage those of you who read my blog to hear about the WLS stuff to view her whole post here. For those of you who just want to hear her story, view this:

My story is the same, complete with iron infusions, B12 shots, etc., except that I was 21 when I had the surgery and I had it because I grew up with a morbidly obese mother who couldn’t play with us much. I wanted to have healthy pregnancies and be able to run around with my kid. 100+ lbs down, I can do that somewhat. But when the neuropathic pain brings me to my knees, I typically just want to lay in bed with my law books and not do anything with my arms or legs. When I had the surgery, the doctor talked for maybe 2 minutes about vitamins and then moved on. He basically said, “Take a multivitamin and calcium and you’ll be fine.” I did. I wasn’t.

I agree with MeltingMama completely. I would not recommend Roux-en-Y to any healthy, vital, person. If the LapBand had been widely available in 2001, I would have done that. (Caveat: I do believe there is something age-related here. My mother, aunt, and I have all had Roux-en-Y and my mother and aunt aren’t having these problems. My mother had it a year before and my aunt had it two years later. I don’t know why they aren’t facing these issues, but I think there could be an age and/or hormone link since MeltingMama and I are both young women.)

Hopefully this info is helpful to someone out there.

April 19th, 2008  Posted at   Law School

I can’t believe it’s already time for finals! :shock: Where did the semester go? Yikes. I have way too much to do so of course I spent the day running errands and generally doing everything except taking care of my school To Do list. I’ve been working on my outline for my major exam but decided to take a blogging break (in addition to Facebook breaks and Bloglines breaks and e-mail breaks throughout the day. Ack – cut me off!!!).

Today I’ve been wondering why Word has stopped catching my British-isms. Having grown up in another country (even though we moved here in my teens), I tend to spell the British way without realizing it. I was working on a document for work this morning and I swear I have favourable and unfavourable all the way through. Word didn’t catch any of them. :?:

I’ve been taking the homeopathic remedies for a week now. I also switched to a new brand of iron for one of my two doses (Vitron-C) and my pain seems to be a bit better this week but who knows? The improvement could be coincidental (or psychosomatic). Either way, I’ll take it. :)

Work’s still rolling along well. Boss mentioned some possible international travel to exotic locales in the fall. Oooh. :smile: We’re also interviewing three nanny candidates tomorrow so hopefully we will have someone in place before I fly off to the other side of the world for a week (and hopefully I can figure out how to juggle that with school!). I put on my best “No problem” attitude but the reality could be a bit dicier.

April 6th, 2008  Posted at   Health
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WARNING: This is another one of my depressing health-related posts. Don’t read it if you’re sick of hearing me whine.

I am now going to do something completely against my nature and try a homeopathic treatment that my therapist has recommended. Basically it’s distilled water with “frequencies” injected in that work against the bad stuff your body’s aura shows are out of balance. But the stuff that my aura gave off without her even knowing about it is very telling and interesting and I suppose it’s worth a shot. At least it’s something that won’t take time (whereas accupuncture appointments or other things would). And it’s not too expensive.

The rational side of me says this is completely nutso. But I’ve read up on this and a lot of people seem to think that this “healing” comes to the healers through God so the faithful part of me wants to believe that if this therapist has been put in my life to suggest this to me, perhaps I should be open to trying it. Have any of you ever tried this? I really do want to have more children sometime in the future and I really want to get off these yucky meds. The past 9 months of pain from the micronutrient-deficiency-related neuropathy has really gotten to me. The pain is just not going away, even with the latest increase in Topamax dosage a few weeks back, and I’ve been trying all weekend to get my brain to concentrate on this appellate brief I’m trying to finish and I just can’t wrap my head around it. :( This has to stop, so I’m desperate. Any thoughts or suggestions are welcome, from the WLS community or others.

March 22nd, 2008  Posted at   Health

After starting my new job this week, this is how my heart feels. The position (so far) is better than I could have imagined. The people are friendly (but not in an intrusive way). I’ve managed to present myself well and do a good job so far. I’ve also managed to overcome the arm pain hurdle and get permission to use a laptop in meetings, citing a preference to get the info down in the most rapid method possible (versus using a medical condition as the reason) and my boss went for it. He’s really behind all my ideas and I’m excited about the road ahead. Plus you should see my amazingly large office!!! :mrgreen: That’s about all I can say about work, but there are so many reasons why it appears to be a great fit for me now and in the future. I think I’ve made the right choice and I am soooooo pleased. Yay!

Medically, my pain started to come back last week. Boo hiss. I was hoping it was just stress-related, but it kept getting worse so I finally called my neurologist on Wednesday and fessed up. He upped the Topamax to 75mg twice a day (from 50mg), which isn’t the 100mg I was on before that was causing all the problems, but it is a 1/2 step away. I’m cautiously optimistic that the side effects won’t be too bad but I also know I can’t function well with the pain and it just kept getting worse. I’m hoping that I can keep my head low and that no one will notice anything at work. I’m working on listening a lot and hoping they will just take it as a sign that I’m trying to learn. I’m also writing down questions before meetings so that I have a list to read from (to avoid the aphasia issue). That helps.

In the meantime, I have TONS of homework and I have been exhausted this week so I haven’t been blogging or e-mailing. Right now I’m off to work on my homework. I’ll try to get to the Roundup tomorrow morning.

February 28th, 2008  Posted at   Health

Roughly three weeks ago, I asked for HR intervention in a work situation that was heaping more stress on my life than I had the capacity to handle. It made it much worse. But, even though I was incredibly depressed by the way things were going, I decided that my life has been spinning out of control for way too many months now and it was time to reclaim control. So I did.

1. Found excellent new job — more responsibilities (paralegal), exciting area of law, more flexibility, little sal. bump, no billable hours!, new position (i.e., not filling anyone’s shoes) :mrgreen:
2. Lost 15lbs since January with help of nutritionist/stress/Topamax’s hunger-killing side effects :???:
3. Switched all of my vitamins to super-absorbable (expensive!) formulas so that I can see if I start to treat the underlying problem.
4. Got on some additional meds to deal with the side effects of the meds/intense stress I’ve been under with family/work/health issues… :roll: Yes, I know that makes no sense and, believe me, I resisted, but when you are crying 24/7 and anxious/irritable all the time, something has got to give. I decided it was time when I couldn’t stop crying as I was getting Pumpkinhead dressed for school. That’s also the day I really ramped up my job search!
5. Read skirt! Rules for the Workplace: An Irreverent Guide to Advancing Your Career. I would definitely recommend this book (in fact, I think someone else may have recommended it as one of our book club selections and I think it’s a good idea. LOTS of great tips!)
6. Read Working With You is Killing Me: Freeing Yourself from Emotional Traps at Work. Again, a very helpful read to help me gain some perspective.
7. Gave notice at work, with two days built in as time off for myself (and to work on schoolwork!) before starting the new job, and planned a girls weekend away with my Mom before I start the new job.
8. Bought FIVE pairs of new shoes. :oops: I don’t do that. I have a weird shoe size and am not a shoe person. But the shoe guy brought out a bunch of Munro shoes, which are so comfy and always fit perfectly. I boughtJuliet in chocolate brown and navy, Lauren in Black Kid, Isabel in Black Kid and these.

So I guess you can say I’m feeling much more on top of my game today and ready to move forward. :razz:

February 12th, 2008  Posted at   Health
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That’s the word I’ve been looking for. Tonight I was trying to put Pumpkinhead to bed and I said, “Okay, now, get up on the car.” Of course he looked at me like I was crazy. :roll: I think I may be doing that at work which may, of course, be why certain people think I’m a little nutty right now.

Anyway, thanks to Beth for this hilarious site with all sorts of information about the various neurological medications out there. I’m on Topamax right now, but I was on Neurontin last fall before it stopped working in January. Here’s part of what CrazyMedz has to say about Topamax:

Topamax’s Typical Side Effects: The usual for anticonvulsants. A pins & needles effect that usually goes away after no more than a week or two. Weight loss and appetite suppression – but please note that not everyone gets this side effect. Sodas and other carbonated beverages will utterly taste like ass, so you may as well give them up now if you’re considering Topamax. Memory loss, aphasia (weird words coming out in place of what you meant to say or write), word find problems (not being able to recall the names of people, things or concepts), and a general cognitive impairment that has earned this drug the nicknames “Stupamax” and “Dopamax.”

Apparently it also interferes with the effectiveness of hormonal methods of birth control I learned today as my cycle started on the first day of my third patch week of Ortho Evra. :shock: NOT good. Add one more thing to the list to worry about. :shock:

Anyway, isn’t it ridiculous that the medication that is supposed to be helping to stop the pain (instead of painkillers) causes so many side effects that it’s practically worse than the pain itself (although really the pain itself is soooooooo much worse, but I forget when I don’t hurt how bad it is when I do)? I met with a nutritionist last Friday and she put me on a wonderful new regimen including some new injectibles and several chewable vitamins so I’m hoping that when those come in later this week, I’ll be able to get started and within a few months the neurologist can start to taper me off these nutty drugs and get me back to the smart person I once was (you know, the competent, intelligent, motivated one who took the LSATs and got into law school in the first place?!?)

UPDATED TO ADD (now that it made the Roundup): I spoke with the neurologist Friday and he agreed to put me back down to a lower dosage of Topamax because the side effects of the higher dose weren’t good and the pain was controlled fine on the lower dosage. I think he was trying to prevent the rebound pain cycle I was having (six weeks of the med working and then wearing off) by raising it from the get-go but I was just a littlecrazy the past 10 days on the higher dosage (weepy, paranoid, hyper-defensive, etc.) Chapin even suggested going back to the libido-killing tri-cyclic meds for pain management because that would be way preferable to this weird body-snatching med that has given him a 15 year-old teenage girl for a wife, complete with cat-like bitchiness and cystic acne. :lol: Hopefully the lower dose will work because other than my emotional state, the drug works great.

February 1st, 2008  Posted at   Health, Law School, Mommy stuff

Maybe it’s because for the first time in a month, I’m not sick or in pain or in crisis, but things are looking up. :smile:

I was really concerned that this semester was going to be terribly difficult for a variety of reasons, but it’s actually going better than I could ever have imagined. It was early enough in the year that I was able to rearrange my schedule and limit the number of nights I’m in class (as part of the recent family crisis, I had to give up one of my two babysitters so I needed to be home more for a while). In addition, the flow of one class has been much easier than expected and the content of the other has been more straightforward and enjoyable. I was worried that I would fall way behind being so sick the past few weeks but my study partner has been great about sending me her class notes and I’ve tried hard to keep up with the reading. Fortunately one of my two classes is a legal writing class so the first week was mostly introductory. Finally, the dean’s office and the accommodations team have been extraordinarily helpful in getting the necessary info from my doctors and helping work out a plan that takes into account both the pain and the confusion/dizziness/fatigue caused by the medication. My teachers have been really accommodating and pleasant to deal with and that has made my life so much easier.

I also met with the neurologist today. The great news is that the nerve pain is real but that the nerves are inflamed, not permanently damaged AND he thinks he knows why. :mrgreen: It’s from the micronutrient deficiencies I’ve been struggling with for several years (iron, B12, calcium and, most recently, Vitamin D) since my gastric bypass surgery in 2001 despite taking daily vitamins faithfully since 1997. I didn’t realize that what they term “malnutrition” could cause this type of pain but he said it’s called osteomalacia. This online piece explains it the best.

The pain of osteomalacia is typically difficult to localize. All the bones are tender—especially the long ones in the legs and arms—because of inflammation of the nerve fibers imbedded in the lining of the bone (called the periosteum). When Vitamin D is deficient, the lining of the bone becomes activated, causing more bone to be absorbed and replaced at an accelerated rate. This is similar to the “growing pains” experienced by adolescents who are going through the growth spurt.

He also said that the numbness and tingling is probably peripheral neuropathy from my long-term struggle with low B12. He’s recommended more frequent injections.

Vitamin B12 deficiency can also cause nerve problems, often causing numbness and tingling that start first in the hands and feet. Hemoglobin is low, but red blood cells are abnormally large.

The good news is that the new drug, Topamax, seems to be working to control the pain. The bad news is that I’ve been struggling with these deficiencies for several years (starting with B12 in 2003, followed by severe anemia in 2006 requiring IV iron infusions) and injection or IV forms seem to be the only way they stay in my body. I’ve been on oral Vitamin D (prescription) since August and my levels are still low and, as I can tell you from the bout of torture a few weeks back, the pain is still really bad. So he’s raising the Topamax to a higher level and I’m going to switch to the expensive-ass specialized vitamins made for people with re-routed intestines for several months to see if they really make that much of a difference (we can’t absorb anything oil-based and we have to take a lot of vitamins separately throughout the day so it’s a big ‘ol pain in the ass, but I guess that’s better than a lifetime of pain, anti-convulsants and broken bones!) If my levels don’t come up by the end of the summer, we’ll look into going back to the hematologist or moving on to a gastroenterologist to see about more invasive gut-specific checks to find out what is wrong with my intestines specifically because only a small percentage of gastric bypass patients seem to have these problems.

Ahh, the foolish things we do to ourselves when we’re young (I was 21). :roll: I was telling my coworker today how painful it was growing up because my friends used to make fun of my mother (she was morbidly obese) and we were always sad that she didn’t want to go outside and play with us. But here I am and I may not be morbidly obese anymore but when I’m in pain I sure don’t want to get down on the floor and roll around with Pumpkinhead or go outside and chase him on his bike. So if I can’t do that, what’s the point? Guess I’d better get with the program and get well, huh?!? On the plus side, I have lost about 10lbs in the past three weeks (hooray for the new meds that make you lose weight instead of gaining it — that and the stress/bronchitis diet!) Now to get outside and actually move my fat butt and sore legs down the sidewalk without hurting myself (Klutz Central here).

Finally, on the work side, things appear to be going fairly well. My boss has eased up since my supervisor talked to him. I’m not sure what will happen there but I’m glad the tension seems to be broken.

If you’ve gotten this far, thanks for reading my book. I have a very busy weekend ahead and am just glad to have a clear mind and a fairly clear head/nose to get it done! Lots of reading and research for a paper and I definitely want to have some one-on-one Pumpkinhead time. Poor little guy hasn’t had much Mommy time in the past few weeks.

P.S. I share all this personal medical information a) to keep a little log of it for myself because, after all, isn’t a blog just really an Internet diary of sorts and b) so that others out there who might be struggling with weird symptoms might read it and know they aren’t alone. There is way too little info out there on the long-term effects of gastric bypass surgery so, even if it’s rather embarrassing to know that all of this pain was brought on by something I chose to do eight years ago, I think it’s important to be honest about it so that others can make informed decisions or know what’s going on with themselves when doctor’s poo-poo their pain as “chronic fatigue” or “fibroymyalgia”.