Thanks for the supportive comments, everyone. My husband is so mad about all of this. He wants me to sue my surgeon. That won’t help me get better. I’m going to talk to my primary care physician this morning to see if she can help me find a new neurologist who has encountered this before and who perhaps has some way to reverse or stop the nerve damage rather than just managing the pain. After the iron treatments last summer, my iron levels got up to the low-normal range (from basement levels), but even with daily iron pills, the levels have gone down. When my blood was tested in July, my iron levels were low. In late August, the level was even lower. My B12 is low even with monthly injections. My D is low, my calcium is low, my blood sugar is always low, and apparently my blood protein levels are low (weird!). All of this, especially the low B12 and D, apparently affects nerve function.

Took the Neurontin last night and it wasn’t too bad. I woke up with mucous-filled eyes, which was weird and makes me wonder if the depressed central nervous system effect means I won’t blink as much? Anyway, I woke up feeling kind of like I’d taken a muscle relaxer. Got up and into the shower. The water on my arms and legs felt prickly like when the doctor runs a fork-like thing down your skin to test nerve function. It wasn’t comfortable. The other thing I am noticing is zaps, like little electric shocks in my wrist and calves. All weird but nothing I can’t deal with. Since I wasn’t falling down tired, I went ahead and took the next dose this morning as prescribed. I’m supposed to take it three times today so I need to figure out the scheduling. It’s been about 45 minutes since I took the pill this morning and I feel a little dopey, but otherwise okay so far.